Patient Knowhow

Patient Knowhow -- The Mission

Is global health. Using the Patient Knowhow platform, researchers and doctors from around the world are discovering the best patient education on YouTube and related research on PubMed. Patient Knowhow aims to uncover the most reliable and easy-to-use information about disease prevention, transmission, causes, and treatment.

Resources

Our Research on Keeping Track of Papers on PubMed
Our Research on Global Pandemics
Related Research on YouTube Patient Education
Related Research on Information-Seeking by Patients, Parents, and Caregivers
Related Research on Keeping Track of Papers

Our Research on Keeping Track of Papers on PubMed

Using Noun Phrases for Navigating Biomedical Literature on Pubmed: How Many Updates Are We Losing Track of? Srikrishna D, Coram MA. PLoS ONE 6(9): e24920.

Our Research on Global Pandemics

The World Is Completely Unprepared for a Global Pandemic. Ranu S. Dhillon, Devabhaktuni Srikrishna, David Beier. Harvard Business Review. MARCH 15, 2017
Containing Zika while we wait for a vaccine. Ranu S. Dhillon, Devabhaktuni Srikrishna, Ashish K. Jha. BMJ. 30 January 2017
The Fight Against Zika Can’t Wait for a Vaccine. Ranu S. Dhillon, Devabhaktuni Srikrishna, David Beier. Harvard Business Review. AUGUST 18, 2016
Overlooking the importance of immunoassays. Ranu S Dhillon, J Daniel Kelly, Devabhaktuni Srikrishna, Robert F Garry. The Lancet Infectious Diseases. Volume 16, No. 10, p1109–1110, October 2016
Testing for Ebola. RANU S. DHILLON, DEVABHAKTUNI SRIKRISHNA, ROBERT F. GARRY. The New York Times. The Opinion Pages. FEB. 9, 2016
Controlling Ebola: next steps. Dhillon RS, Srikrishna D, Sachs JS. The Lancet, Volume 384, Issue 9952, Pages 1409 - 1411, 18 October 2014.

Ebola control: rapid diagnostic testing. Dhillon RS, Srikrishna D, Garry RF, Chowell G. The Lancet Infectious Diseases. Early Online Publication, 19 November 2014
Ebola: A slow-motion atomic bomb. Srikrishna D, Dhillon RS. The Bulletin of Atomic Scientists. Analysis. November 25, 2014.
What We’ve Learned About Fighting Ebola. by Ranu S. Dhillon and Devabhaktuni Srikrishna. Harvard Business Review. JULY 16, 2015

Related Research on YouTube Patient Education

With an estimated 1 billion views of patient education videos per year, YouTube has grown into the world's most comprehensive collection of patient education videos in the world.

As studies have shown, YouTube still needs to be organized and rated by medical experts. The best patient education videos for each medical condition can come from unexpected sources, often not the most popular destination sites.

Study on PubMed	# of YouTube Videos	Useful	Misleading
YouTube: a good source of information on pediatric tonsillectomy? Strychowsky JE, Nayan S, Farrokhyar F, MacLean J. Int J Pediatr Otorhinolaryngol. 2013 Jun;77(6):972-5	156	26%	2%
YouTube as source of prostate cancer information. Steinberg PL, Wason S, Stern JM, Deters L, Kowal B, Seigne J. Urology. 2010 Mar;75(3):619-22	51	27%
YouTube as a source of information on the H1N1 influenza pandemic. Pandey A, Patni N, Singh M, Sood A, Singh G. Am J Prev Med. 2010 Mar;38(3):e1-3	142	61%	23%
Nervous system examination on YouTube. Azer SA, Aleshaiwi SM, Algrain HA, Alkhelaif RA. BMC Med Educ. 2012 Dec 22;12:126.	129	61%
YouTube as a source of information on rhinosinusitis: the good, the bad and the ugly. Biggs TC, Bird JH, Harries PG, Salib RJ. J Laryngol Otol. 2013 Aug;127(8):749-54	100	45%	27%
Misleading health-related information promoted through video-based social media: anorexia on YouTube. Syed-Abdul S, Fernandez-Luque L, Jian WS, Li YC, Crain S, Hsu MH, Wang YC, Khandregzen D, Chuluunbaatar E, Nguyen PA, Liou DM. J Med Internet Res. 2013 Feb 13;15(2):e30	40	56%	29%
YouTube as a source of information on kidney stone disease. Sood A, Sarangi S, Pandey A, Murugiah K. Urology. 2011 Mar;77(3):558-62	199	58%	18%
Assessing the credibility of the "YouTube approach" to health information on acute myocardial infarction. Pant S, Deshmukh A, Murugiah K, Kumar G, Sachdeva R, Mehta JL. Clin Cardiol. 2012 May;35(5):281-5	104	24%
YouTube videos as a teaching tool and patient resource for infantile spasms. Fat MJ, Doja A, Barrowman N, Sell E. J Child Neurol. 2011 Jul;26(7):804-9	100	10%

More studies about patient education on YouTube

YouTube as a source of information on immunization: a content analysis. Keelan J, Pavri-Garcia V, Tomlinson G, Wilson K. JAMA. 2007 Dec 5;298(21):2482-4
Medical information on YouTube. Hayanga AJ, Kaiser HE. JAMA. 2008 Mar 26;299(12):1424-5; author reply 1425
YouTube in pediatric anesthesia induction. Gomes SH. Paediatr Anaesth. 2008 Aug;18(8):801-2
Human papillomavirus vaccination coverage on YouTube. Ache KA, Wallace LS. Am J Prev Med. 2008 Oct;35(4):389-92
The choking game and YouTube: a dangerous combination. Linkletter M, Gordon K, Dooley J. Clin Pediatr (Phila). 2010 Mar;49(3):274-9
YouTube: a gauge of public perception and awareness surrounding epilepsy. Lo AS, Esser MJ, Gordon KE. Epilepsy Behav. 2010 Apr;17(4):541-5
The brave new world of epilepsy in the YouTube universe. Sirven JI. Epilepsy Behav. 2010 May;18(1-2):1-2
Organ donation on Web 2.0: content and audience analysis of organ donation videos on YouTube. Tian Y. Health Commun. 2010 Apr;25(3):238-46
The availability and content analysis of melanoma information on YouTube. Babamiri K, Nassab RS. Plast Reconstr Surg. 2010 Jul;126(1):51e-52e
Re: Steinberg et al.: YouTube as source of prostate cancer information (Urology 2010;75:619-622). Siegel A. Urology. 2010 Aug;76(2):518; author reply 519
YouTube as a source of quitting smoking information. Backinger CL, Pilsner AM, Augustson EM, Frydl A, Phillips T, Rowden J. Tob Control. 2011 Mar;20(2):119-22
Fat stigmatization on YouTube: a content analysis. Hussin M, Frazier S, Thompson JK. Body Image. 2011 Jan;8(1):90-2
YouTube as a source of information on cardiopulmonary resuscitation. Murugiah K, Vallakati A, Rajput K, Sood A, Challa NR. Resuscitation. 2011 Mar;82(3):332-4
The YouTube cure. Moisse K. Sci Am. 2011 Feb;304(2):34, 37
The scope of nonsuicidal self-injury on YouTube. Lewis SP, Heath NL, St Denis JM, Noble R. Pediatrics. 2011 Mar;127(3):e552-7
Editorial comment. YouTube as a source of information on kidney stone disease. Carson CC. Urology. 2011 Mar;77(3):562-3; author reply 563
Dr. YouTube will see you now. Vogel L. CMAJ. 2011 Apr 5;183(6):647-8
An investigation of smoking cessation video content on YouTube. Richardson CG, Vettese L, Sussman S, Small SP, Selby P. Subst Use Misuse. 2011;46(7):893-7
YouTube self-harm videos under scrutiny. Potera C. Am J Nurs. 2011 Jun;111(6):20
Obesity in the new media: a content analysis of obesity videos on YouTube. Yoo JH, Kim J. Health Commun. 2012;27(1):86-97
'YouTube': a useful tool for reminiscence therapy in dementia? O'Rourke J, Tobin F, O'Callaghan S, Sowman R, Collins DR. Age Ageing. 2011 Nov;40(6):742-4
The presence of social support messages on YouTube videos about inflammatory bowel disease and ostomies. Frohlich DO, Zmyslinski-Seelig A. Health Commun. 2012;27(5):421-8
Movement disorders on YouTube--caveat spectator. Stamelou M, Edwards MJ, Espay AJ, Fung VS, Hallett M, Lang AE, Tijssen MA, Bhatia KP. N Engl J Med. 2011 Sep 22;365(12):1160-1
Cancer patients find a voice on YouTube. Nelson B. Cancer Cytopathol. 2011 Oct 25;119(5):292
When vaccines go viral: an analysis of HPV vaccine coverage on YouTube. Briones R, Nan X, Madden K, Waks L. Health Commun. 2012;27(5):478-85
Portrayal of smokeless tobacco in YouTube videos. Bromberg JE, Augustson EM, Backinger CL. Nicotine Tob Res. 2012 Apr;14(4):455-62
The role of nutrition in acne pathogenesis: YouTube as a reflection of current popular thought. Qureshi N, Lowenstein EJ. Skinmed. 2011 Sep-Oct;9(5):279-80
YouTube for information on rheumatoid arthritis--a wakeup call? Singh AG, Singh S, Singh PP. J Rheumatol. 2012 May;39(5):899-903
Public perception of Tourette syndrome on YouTube. Fat MJ, Sell E, Barrowman N, Doja A. J Child Neurol. 2012 Aug;27(8):1011-6
Videos on rhabdomyosarcoma on YouTube: an example of the availability of information on pediatric tumors on the web. Clerici CA, Veneroni L, Bisogno G, Trapuzzano A, Ferrari A. J Pediatr Hematol Oncol. 2012 Nov;34(8):e329-31
YouTube and inflammatory bowel disease. Mukewar S, Mani P, Wu X, Lopez R, Shen B. J Crohns Colitis. 2013 Jun;7(5):392-402
Review of 'When I die: lessons from the death zone' (YouTube). de Silva RN. BMJ Support Palliat Care. 2012 Sep;2(3):287
Analysis of the YouTube videos on basic life support and cardiopulmonary resuscitation. Tourinho FS, de Medeiros KS, Salvador PT, Castro GL, Santos VE. Rev Col Bras Cir. 2012 Jul-Aug;39(4):335-9
Helpful or harmful? An examination of viewers' responses to nonsuicidal self-injury videos on YouTube. Lewis SP, Heath NL, Sornberger MJ, Arbuthnott AE. J Adolesc Health. 2012 Oct;51(4):380-5
The quality of video information on burn first aid available on YouTube. Butler DP, Perry F, Shah Z, Leon-Villapalos J. Burns. 2013 Aug;39(5):856-9
Big hits on the small screen: an evaluation of concussion-related videos on YouTube. Williams D, Sullivan SJ, Schneiders AG, Ahmed OH, Lee H, Balasundaram AP, McCrory PR. Br J Sports Med. 2014 Jan;48(2):107-11
The presentation of seizures and epilepsy in YouTube videos. Wong VS, Stevenson M, Selwa L. Epilepsy Behav. 2013 Apr;27(1):247-50
Identifying Measures Used for Assessing Quality of YouTube Videos with Patient Health Information: A Review of Current Literature. Gabarron E, Fernandez-Luque L, Armayones M, Lau AY. Interact J Med Res. 2013 Feb 28;2(1):e6
YouTube as a potential online source of information in the prevention and management of paediatric burn injuries. Oomman A, Sarwar U, Javed M, Hemington-Gorse S. Burns. 2013 Dec;39(8):1652
A domain-based approach for retrieving trustworthy health videos from YouTube. Karlsen R, Borrás Morell JE, Fernández Luque L, Traver Salcedo V. Stud Health Technol Inform. 2013;192:1008
Are YouTube seizure videos misleading? Neurologists do not always agree. Brna PM, Dooley JM, Esser MJ, Perry MS, Gordon KE. Epilepsy Behav. 2013 Nov;29(2):305-7
A systematic review of methods for studying consumer health YouTube videos, with implications for systematic reviews. Sampson M, Cumber J, Li C, Pound CM, Fuller A, Harrison D. PeerJ. 2013;1:e147
YouTube as a source of information for children with paroxysmal episodes. Borusiak P, Langer T, Tibussek D, Becher T, Jenke AC, Cagnoli S, Karenfort M. Klin Padiatr. 2013 Dec;225(7):394-7
Patient information on breast reconstruction in the era of the world wide web. A snapshot analysis of information available on youtube.com. Tan ML, Kok K, Ganesh V, Thomas SS. Breast. 2014 Feb;23(1):33-7
Evaluation of the educational value of YouTube videos about physical examination of the cardiovascular and respiratory systems. Azer SA, Algrain HA, AlKhelaif RA, AlEshaiwi SM. J Med Internet Res. 2013 Nov 13;15(11):e241
Effectiveness of YouTube as a Source of Medical Information on Heart Transplantation. Chen HM, Hu ZK, Zheng XL, Yuan ZS, Xu ZB, Yuan LQ, Perez VA, Yuan K, Orcholski M, Liao XB. Interact J Med Res. 2013 Nov 21;2(2):e28
YouTube as an information source for pediatric adenotonsillectomy and ear tube surgery. Sorensen JA, Pusz MD, Brietzke SE. Int J Pediatr Otorhinolaryngol. 2014 Jan;78(1):65-70
Is content really king? An objective analysis of the public's response to medical videos on YouTube. Desai T, Shariff A, Dhingra V, Minhas D, Eure M, Kats M. PLoS One. 2013;8(12):e82469
YouTube as a source of information about retinitis pigmentosa. Guthrie G, Davies RM, Fleming CK, Browning AC. Eye (Lond). 2014 Apr;28(4):499-500
Analysis of YouTube as a source of information for West Nile Virus Infection. Dubey D, Amritphale A, Sawhney A, Dubey D, Srivastav N. Clin Med Res. 2014 Feb 26;
YouTube as a source of chronic obstructive pulmonary disease patient education: a social media content analysis. Stellefson M, Chaney B, Ochipa K, Chaney D, Haider Z, Hanik B, Chavarria E, Bernhardt JM. Chron Respir Dis. 2014 May;11(2):61-71
Healthcare information on YouTube: A systematic review. Madathil KC, Rivera-Rodriguez AJ, Greenstein JS, Gramopadhye AK. Health Informatics J. 2014 Mar 25;
YouTube and Pediatric Surgery. What Is the Danger for Parents? Adorisio O, Silveri M, Peppo FD, Ceriati E, Marchetti P, Goyet JD. Eur J Pediatr Surg. 2014 Mar 28;
YouTube-based critical care educational videos go viral. Carlos WG, Goss K, Morad M. Med Educ. 2014 May;48(5):526
Pediatric surgery on YouTube™: is the truth out there? Bezner SK, Hodgman EI, Diesen DL, Clayton JT, Minkes RK, Langer JC, Chen LE. J Pediatr Surg. 2014 Apr;49(4):586-9
YouTube as a source of patient information on gallstone disease. Lee JS, Seo HS, Hong TH. World J Gastroenterol. 2014 Apr 14;20(14):4066-70
Autobiologies on YouTube: Narratives of Direct-to-Consumer Genetic Testing. Harris A, Kelly SE, Wyatt S. New Genet Soc. 2014 Mar;33(1):60-78
YouTube™ as a source of patient information for lumbar discectomy. Brooks FM, Lawrence H, Jones A, McCarthy MJ. Ann R Coll Surg Engl. 2014 Mar;96(2):144-6
YouTube as a Tool for Pain Management With Informal Caregivers of Cancer Patients: A Systematic Review. Wittenberg-Lyles E, Parker Oliver D, Demiris G, Swarz J, Rendo M. J Pain Symptom Manage. 2014 Dec;48(6):1200-1210
Laughing and Crying: Mixed Emotions, Compassion, and the Effectiveness of a YouTube PSA About Skin Cancer. Myrick JG, Oliver MB. Health Commun. 2014 May 30;:1-10
Utilization of YouTube as a Tool to Assess Patient Perception Regarding Implanted Cardiac Devices. Hayes K, Mainali P, Deshmukh A, Pant S, Badheka AO, Paydak H. N Am J Med Sci. 2014 Jul;6(7):291-4
YouTube As an Information Source for Femoroacetabular Impingement: A Systematic Review of Video Content. MacLeod MG, Hoppe DJ, Simunovic N, Bhandari M, Philippon MJ, Ayeni OR. Arthroscopy. 2015 Jan;31(1):136-142
Are YouTube videos accurate and reliable on basic life support and cardiopulmonary resuscitation? Yaylaci S, Serinken M, Eken C, Karcioglu O, Yilmaz A, Elicabuk H, Dal O. Emerg Med Australas. 2014 Oct;26(5):474-7
Analysis of YouTube™ videos related to bowel preparation for colonoscopy. Basch CH, Hillyer GC, Reeves R, Basch CE. World J Gastrointest Endosc. 2014 Sep 16;6(9):432-5
What Do Social Media Say About Makeovers? A Content Analysis of Cosmetic Surgery Videos and Viewers' Responses on YouTube. Wen N, Chia SC, Hao X. Health Commun. 2014 Sep 25;:1-10
Naturally occurring peer support through social media: the experiences of individuals with severe mental illness using YouTube. Naslund JA, Grande SW, Aschbrenner KA, Elwyn G. PLoS One. 2014;9(10):e110171
YouTube as an educational tool regarding male urethral catheterization. Nason GJ, Kelly P, Kelly ME, Burke MJ, Aslam A, Giri SK, Flood HD. Scand J Urol. 2014 Nov 3;:1-4
Characteristics of YouTube™ Videos Related to Mammography. Basch CH, Hillyer GC, MacDonald ZL, Reeves R, Basch CE. J Cancer Educ. 2014 Dec 12;
Framing Life and Death on YouTube: The Strategic Communication of Organ Donation Messages by Organ Procurement Organizations. VanderKnyff J, Friedman DB, Tanner A. J Health Commun. 2014 Dec 12;:1-9
Also search for "YouTube[Title]" on PubMed

Related Research on Information-Seeking by Patients, Parents, and Caregivers

Patients, parents, and caregivers are seeking the confidence of medical experts when learnng about disease prevention, transmission, causes, and treatments.

Online pediatric information seeking among mothers of young children: results from a qualitative study using focus groups. Bernhardt JM, Felter EM. J Med Internet Res. 2004 Mar 1;6(1):e7
Nutrition-related information-seeking behaviours before and throughout the course of pregnancy: consequences for nutrition communication. Szwajcer EM, Hiddink GJ, Koelen MA, van Woerkum CM. Eur J Clin Nutr. 2005 Aug;59 Suppl 1:S57-65
Differences in information seeking among breast, prostate, and colorectal cancer patients: results from a population-based survey. Nagler RH, Gray SW, Romantan A, Kelly BJ, DeMichele A, Armstrong K, Schwartz JS, Hornik RC. Patient Educ Couns. 2010 Dec;81 Suppl:S54-62
Sources of information used by women during pregnancy to meet their information needs. Grimes HA, Forster DA, Newton MS. Midwifery. 2014 Jan;30(1):e26-33
Do gynaecology outpatients use the Internet to seek health information? A questionnaire survey. Neelapala P, Duvvi SK, Kumar G, Kumar BN. J Eval Clin Pract. 2008 Apr;14(2):300-4
Pregnant women's use of the internet in relation to their pregnancy in Izmir, Turkey. Kavlak O, Atan SÜ, Güleç D, Oztürk R, Atay N. Inform Health Soc Care. 2012 Dec;37(4):253-63
Prenatal Googling: Online Information Seeking by Israeli Women During Pregnancy. Eimi LEV. February 2013; Volume 3, Issue 2. International Review of Social Research.

More studies about information-seeking by patients

Women's information-seeking behavior after receiving contraceptive versus noncontraceptive prescriptions. Russo JA, Parisi SM, Kukla K, Schwarz EB. Contraception. 2013 Jun;87(6):824-9
Nutrition-related information-seeking behaviours of women trying to conceive and pregnant women: evidence for the life course perspective. Szwajcer EM, Hiddink GJ, Maas L, Koelen MA, van Woerkum CM. Fam Pract. 2008 Dec;25 Suppl 1:i99-104
Explicit and implicit information needs of people with depression: a qualitative investigation of problems reported on an online depression support forum. Barney LJ, Griffiths KM, Banfield MA. BMC Psychiatry. 2011 May 18;11:88
Information-seeking behavior of women in their path to an innovative alternate treatment for symptomatic uterine fibroids. Ankem K. J Med Libr Assoc. 2007 Apr;95(2):164-72, e51-3
Internet information-seeking in mental health: population survey. Powell J, Clarke A. Br J Psychiatry. 2006 Sep;189:273-7
Health information-seeking behaviors, health indicators, and health risks. Weaver JB 3rd, Mays D, Weaver SS, Hopkins GL, Eroglu D, Bernhardt JM. Am J Public Health. 2010 Aug;100(8):1520-5
Information-seeking styles among cancer patients before and after treatment by demographics and use of information sources. Eheman CR, Berkowitz Z, Lee J, Mohile S, Purnell J, Rodriguez EM, Roscoe J, Johnson D, Kirshner J, Morrow G. J Health Commun. 2009 Jul-Aug;14(5):487-502
A descriptive study of the use of the Internet by women seeking pregnancy-related information. Larsson M. Midwifery. 2009 Feb;25(1):14-20
Online information exchanges for parents of children with a rare health condition: key findings from an online support community. Oprescu F, Campo S, Lowe J, Andsager J, Morcuende JA. J Med Internet Res. 2013 Jan 22;15(1):e16
Parents of deaf children seeking hearing loss-related information on the internet: the Australian experience. Porter A, Edirippulige S. J Deaf Stud Deaf Educ. 2007 Fall;12(4):518-29
Parental use of the Internet to seek health information and primary care utilisation for their child: a cross-sectional study. Bouche G, Migeot V. BMC Public Health. 2008 Aug 28;8:300
Internet use in families with children requiring cardiac surgery for congenital heart disease. Ikemba CM, Kozinetz CA, Feltes TF, Fraser CD Jr, McKenzie ED, Shah N, Mott AR. Pediatrics. 2002 Mar;109(3):419-22
Information on the World Wide Web--how useful is it for parents? Sim NZ, Kitteringham L, Spitz L, Pierro A, Kiely E, Drake D, Curry J. J Pediatr Surg. 2007 Feb;42(2):305-12
Use and satisfaction of the internet in obtaining information on brachial plexus birth palsies and its influence on decision-making. Shah A, Kuo A, Zurakowski D, Waters PM. J Pediatr Orthop. 2006 Nov-Dec;26(6):781-4
Where do families of children with epilepsy obtain their information? Lu C, Wirrell E, Blackman M. J Child Neurol. 2005 Nov;20(11):905-10

Related Research on Keeping Track of Papers

In our surveys, medical researchers report spending 5-20 hours per week keeping track of related literature on PubMed due to the flood of new papers published every day.

How to tame the flood of literature. Elizabeth Gibney. 03 September 2014, Nature Toolbox.
Google Scholar pioneer on search engine's future. Richard Van Noorden. 07 November 2014, NATURE | NEWS: Q&A.